Tag Archives: special needs

#MebeforeEuthanasia

seems I might be right to be worried ( Will I hate the Me before You Movie?) Lots of Protests in the UK and it seems like the movie marketing and pr people completely underestimated the potential for negative reaction … Continue reading

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Will I hate the Me Before You Movie?

June 2nd is the day Chelsea graduates High School and if we stick to the plan we will also go and see the Me Before You (MBU) movie. I think Chelsea and Fran have never been more excited for a movie. … Continue reading

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The battle of the Sides, Mom vs Work

I titled this blog Mom on the Side as a reference to the almost schizophrenic existence that most working mothers have to lead running between the office and home but also to highlight my role with Chelsea, the Mom on the side of the bed, … Continue reading

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the page turned and now it seems anything is possible

All we’ve ever wanted, a simple device that could help her turn the page. For the last 6 years, one of the most frequent things Chelsea has said is “Next Page”. Reading is one of the main pleasures in her … Continue reading

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The sibling stars win all the awards this week

Sometimes it’s the supporting actors that give the best performance and steal the movie from the “star”. Often in our family we are all bit part actors to Chelsea’s starring role  (see previous) and yet this weekend was once again all … Continue reading

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Just a normal morning – and then some!

Chelsea broke her wheelchair this morning –  the obvious question is how but the real question is why.

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Word of the Day: infantilize

I am not sure if I  had ever used or heard the word infantilize in a general conversation until last week and then suddenly it was the ‘word de jour”, as teachers and bloggers bemoaned the tendency of others to … Continue reading

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the art in the wheels

 great picture of the wheels on Chelsea’s wheelchair from the painting session today.  Thanks to Ms Mac.   “when you can’t hold a brush in your hands mouth or feet, just use your wheels and dance” Paintability 2013  

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Back at School – but tell me how you really feel!

Summer went by like a fly.  Summer went by so fast it was hard to tell which day was which and how many days were left.  But when the real summer stopped and the nightmare of school began it was … Continue reading

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a holiday from being the care giver, if only for a moment.

Six years ago… Staying in bed for a week was a novelty. Six years ago Chelsea and I stayed at home while the rest of the family went to the Philippines for a wedding. We stayed in bed for a … Continue reading

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