Tag Archives: advocacy


This amazing mom of three adopted children with complex medical needs wrote a poem that perfectly expresses how inadequate I feel most days. Read her story on http://www.gofundme.com/complexfamily and be inspired to donate something to support her if you can… … Continue reading

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Spread the Word to end R and S and all hateful words (updated)

I first posted this under the title Forget R – what about the S Word (1/03/12) and it was prompted by the action in support of Spread the word to end the Word.  The R word is never acceptable but please don’t limit … Continue reading

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Forget R what about the S Word

Advocating for Chelsea has required me to absorb a huge amount of new information.  Medical and scientific sites are second nature to me and I can google a symptom or concomitant drug reaction with the best of them however the thing … Continue reading

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International Wheelchair Day 1st March 2012

Whenever we go somewhere for the first time I call ahead to ask about access for Chelsea. I am usually told sure no problem, then when I get there they tell me could you just drive around the building turn … Continue reading

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Glee – Christmas hell

For us, watching Glee is usually a wonderful family experience: love the songs and dancing(most of the time), love the amazing Emmy deserving Jane Lynch / Sue Sylvester, love Becky, love the slushies, love the advocacy for everything minority and challenging … Continue reading

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