the page turned and now it seems anything is possible

All we’ve ever wanted, a simple device that could help her turn the page.

Photo by Janet Taub

Photo:  Janet Taub, Planetphoto.usa        

For the last 6 years, one of the most frequent things Chelsea has said is “Next Page”. Reading is one of the main pleasures in her life and she reads voraciously – the down side for us has been turning the pages, every 30 seconds or less. Often for up to 3 or 4 hours. Whether it’s been a Kindle or an I-Pad, Android tablet or a good old-fashioned book someone has always had to turn the page for her Continue reading

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Lydia Bennet – most irritating character of all time!

Just finished watching the BBC Christmas treat Death Comes to Pemberley, from the Pride and Prejudice sequel  penned by PD James, called a crime against literature by some critics, but once I got over the fact that it was a murder mystery and stopped looking for Gibbs to show up at the crime scene, I actually liked it. Apart from Lydia (played wonderfully by Dr Who alum Jenna Coleman) the irritating character who as always I just wanted to slap.  Continue reading

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Jumping for Joy!

The weekly photo challenge: Joy .  franny jumping

I love that Francesca looks so happy and carefree in this.

Great Boxing Day Walk 2013 at Macritchie Reservoir Singapore

Be the Joy you wish to see… here’s hoping for more Joyful days in 2014

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The sibling stars win all the awards this week

Sometimes it’s the supporting actors that give the best performance and steal the movie from the “star”.

Often in our family we are all bit part actors to Chelsea’s starring role  (see previous) and yet this weekend was once again all about the amazing performance of the sibling stars.

Zachary went up to KL in Malaysia for the IASAS Model United Nations (MUN) Zachary MUN Russian Reunion 2Conference and came back tired but totally inspired and successful having been voted the Best Delegate of his committee (disarmament), Best Dressed and a Best Speaker. He loves the big red countries Continue reading

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Just a normal morning – and then some!

Chelsea broke her wheelchair this morning –  the obvious question is how but the real question is why. Continue reading

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Word of the Day: infantilize

I am not sure if I  had ever used or heard the word infantilize in a general conversation until last week and then suddenly it was the ‘word de jour”, as teachers and bloggers bemoaned the tendency of others to infantilize people with disablitites (pwd). Sure enough I went with the crowd and used it in a conversation with my very own pwd, clumsily and self consciously admittedly, and even then I had to explain the context to her. She just laughed at me.

Chelsea’s level of disability means that everyday she has to be cared for “like a baby”.  Her physical needs demand it. But it would be a brave person who tried to put this baby in the corner. Continue reading

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the art in the wheels

this is what a paintbrush looks like when you paint with your  wheels

 great picture of the wheels on Chelsea’s wheelchair from the painting session today. 

Thanks to Ms Mac.


“when you can’t hold a brush

in your hands mouth or feet,

just use your wheels and dance”

Paintability 2013


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