All we’ve ever wanted, a simple device that could help her turn the page.
Photo: Janet Taub, Planetphoto.usa
For the last 6 years, one of the most frequent things Chelsea has said is “Next Page”. Reading is one of the main pleasures in her life and she reads voraciously – the down side for us has been turning the pages, every 30 seconds or less. Often for up to 3 or 4 hours. Whether it’s been a Kindle or an I-Pad, Android tablet or a good old-fashioned book someone has always had to turn the page for her Continue reading
Posted in Children, Disability, Singapore
Tagged 2014, Chelsea Fairclough, disability, disabled, inspiration, motherhood, paintability, parenting, quadrilegic, quadriplegia, special needs
The weekly photo challenge: Joy .
I love that Francesca looks so happy and carefree in this.
Great Boxing Day Walk 2013 at Macritchie Reservoir Singapore
Be the Joy you wish to see… here’s hoping for more Joyful days in 2014
Sometimes it’s the supporting actors that give the best performance and steal the movie from the “star”.
Often in our family we are all bit part actors to Chelsea’s starring role (see previous) and yet this weekend was once again all about the amazing performance of the sibling stars.
Zachary went up to KL in Malaysia for the IASAS Model United Nations (MUN) Conference and came back tired but totally inspired and successful having been voted the Best Delegate of his committee (disarmament), Best Dressed and a Best Speaker. He loves the big red countries Continue reading
Posted in Children, Disability, Family, Parents
Tagged Bhutanese Refugee Education Project, charity, Chelsea, disability, family, inspiration, kids, mun, parenting, parents, siblings, special needs
Chelsea broke her wheelchair this morning – the obvious question is how but the real question is why. Continue reading
Posted in Children, Disability, Family, Personal Development
Tagged anger management, disability, disabled, morning, parenting, parents, quadriplegia, special needs
I am not sure if I had ever used or heard the word infantilize in a general conversation until last week and then suddenly it was the ‘word de jour”, as teachers and bloggers bemoaned the tendency of others to infantilize people with disablitites (pwd). Sure enough I went with the crowd and used it in a conversation with my very own pwd, clumsily and self consciously admittedly, and even then I had to explain the context to her. She just laughed at me.
Chelsea’s level of disability means that everyday she has to be cared for “like a baby”. Her physical needs demand it. But it would be a brave person who tried to put this baby in the corner. Continue reading
Posted in Children, Disability, Identity
Tagged disability, disability quotes, infantilize, Morgan Freeman, opinion, paintability, quadriplegic, society, special needs
great picture of the wheels on Chelsea’s wheelchair from the painting session today.
Thanks to Ms Mac.
“when you can’t hold a brush
in your hands mouth or feet,
just use your wheels and dance”